This webinar was held on June 4, 2024. This webinar discussed the recent Flexpa report on the state of the Patient Access API, which includes the CARIN IG for Blue Button, with the Flexpa team who are members of CARIN. We also heard ‘on the ground’ experiences from CARIN consumer-facing applications who are connecting to …
This webinar was held on May 15, 2024 The Alliance for Person-Centered Care is a group of stakeholders with a common interest to incorporate person-centered care and the use of performance measures based on patient-reported data in clinical care and quality programs. On this webinar, The Alliance publicly introduced itself for the first time. Dr. …
The Save Rare Treatments Task Force, a new multi-sector public policy and advocacy collaboration convened by Leavitt Partners, an HMA Company, publicly launched this week and today released a letter of support for recently introduced, bipartisan, bicameral legislation. The Task Force is comprised of organizations representing persons living with rare diseases, biopharmaceutical innovators, and other …